News

 

9 August 2016

We are now taking reservations for our next meeting on Saturday 1st October 2016 at the Queen Elizabeth Hospital Birmingham (UK). If you are affected by autoimmune hepatitis (AIH) and would like to attend then please register via this link

9 May 2016

Brilliant AIH meeting on Saturday 7th at the Royal Free Hospital London. Over 90 AIH patients/families left the meeting feeling better informed and more empowered about AIH. Especial thanks to Dr Douglas Thorburn and Dr Aileen Marhsal consultant hepatologists for their fascination talks on AIH treatments and Dr Francesca Saffioti and Dr Neil Halliday for updating us on the amazing research going on at the Royal Free.

6 March 2016

If you want to attend our next meeting at the Royal Free hospital in London on Saturday 7th May 2016 full details on how to reserve a space are here

12 August 2015

You can reserve your place for our meeting on 26 September now. Link is  here

Further details about the meeting are also on that site together with link if you have any queries/problems.

7 May 2015

Date for our next meeting in Birmingham (UK) is Saturday 26 September 2015. More details soon!

5 April 2015

There is a public forum being held at John Radcliffe Hospital Oxford (UK) on 29 April 2015 at 7pm. Anyone can attend – no need to register. More details on the John Radcliffe website at  http://www.ouh.nhs.uk/news/events/

 

17 January 2015

UK-AIH (see below) has received funding for 2 more years which is great news. New centres are joining and we will let you know where they are as soon as we can. In the meantime do ask your doctor at your next hospital visit if you can take part.

 

9 October 2014

A big research programme into AIH has started in the UK! It is called UK-AIH and the person leading it is Professor David Jones from Newcastle University.

Any hospital in the UK can get involved – so far patients have been recruited at Newcastle and Birmingham. So if you have AIH and are interested in taking part in research that will help AIH patients now and in the future then ask your hospital at your next appointment if they are participating in UK-AIH and say you are interested. It will only involve having some blood taken (when you are having routine blood tests) and filling in a questionnaire. You will be helping yourself and others with AIH in the future. The more patients who get involved the better the data.

13 September 2014

We held a very successful meeting in Birmingham on the 6th. Thanks to all those who attended – and of course to Dr Ye Oo and Dr Gideon Hirschfield who gave so freely of their time to answer so many questions. We will put a summary online soon.

Coming soon – news of impending research called UK-AIH………

20 August 2014

Only 2 weeks now until our first meeting in Birmingham on 6th September! Details are below.

Nearly a full house but have had a small number of cancellations so please email me at meeting@autoimmunehepatitis.org.uk if you would like to attend.

Ann

 

20 June 2014

Support Group Meeting 6 September 2014

If you fancy meeting up with others with AIH and hearing a talk from an expert then read on! A meeting has been arranged for Saturday 6th September Birmingham UK for the AIH Support Group. The main speaker will be Dr Gideon Hirschfield, Lead Clinician, Autoimmune Liver Disease Programme, Queen Elizabeth Hospital, Birmingham.

It will take place at Birmingham University/Queen Elizabeth Hospital a few miles outside Birmingham city centre. There are good transport links so should be easy to get to.

Still firming up a precise timetable but we will probably start at 1130/1200 and will finish by 1600/1630.

If you are interested in attending then please let me know as soon as possible as we have had loads of interest already from people on our Facebook group and forum and only a few places remain.

If you are interested in attending please use the contact form or email me at meeting@autoimmunehepatitis.org.uk. If you have any questions then you can ask those the same way.

I will maintain a reserve list when all places are filled as I am sure some people won’t be able to attend and places will become available.

Ann

 

 

10 June 2014

Audit of AIH in UK

Work is starting on a multi centre audit collecting data on the management of autoimmune hepatitis (AIH), the outcomes achieved and the patient experience. The work is being carried out by Sheffield University and co-ordinated by Dr Vikki Gordon and Professor Dermot Gleeson. Data is being collected initially from 29 hospitals in England and Wales although more hospitals may be added in the future depending on response and funding.

Hospitals taking part will be contacting patients in due course but if you have AIH and attend one of the participating hospitals why not mention it at your next hospital visit?

The hospitals participating are:

N East – Darlington/Durham, Newcastle, North Tees, Scarborough
N West – Manchester, Bradford, Stockport
Yorkshire – Airdale, Barnsley, Bassetlaw, Calderdale, Chesterfield, Doncaster, Hull, Leeds, Mid Yorks, N Staffs, Rotherham. Sheffield, York
East Midlands – Nottingham, Leicester, Coventry, Derby,
Other – Kettering, Cambridge, Kings College
Wales – Swansea, Newport
A letter outlining the research and giving names of the hospitals taking part is here